ironymaiden: (quilt)
due to circumstances beyond my control, i have made so many hats this year. when i talked with Mom on Mother's Day, i nattered on about what i've been making (as i often do, it's a great thing to have to talk about with someone who is also crafty). apparently she passed that info on to Dad; the phone rang while i was waiting for the shuttle to work the next day, with a request for a hat for Dad. it started out being a request for a surgeon's cap like i'd been doing recently (a resized version of this pattern) and rapidly turned into a consultation about designing something completely different. *sigh*

but i did kind of love how Mom was describing what they wanted: "one of those pillbox hats like Muslim men wear". fortunately, Dad's head measurements are just a 1/4" smaller than C's head so i at least was able to do fitting. i mostly improvised. i have my paper pattern for the top of the head and notes. it's quilting cotton on the outside and recycled flannel inside the brim for softness. it's since arrived and the fit is perfect. they're waiting for it to run through the laundry there to report back on how it holds up and if they want more on the same model.
ironymaiden: (chinstrap)
i talked with Dad on the phone today, after he'd had a full day of therapy and was waiting for his dinner. you have to give him time to formulate his sentences (which would be way easier if i could see him) but his speech is clear and he can carry on a conversation.

i mostly held it together while we talked. i told him that i was upset when i couldn't call him on his birthday (and that's where i got choked up while on the phone) and he said that niece A said he should have a birthday when he gets home. i agreed, and he proceeded to tell me all the things he would like to eat :)

he seems to be remembering things and attributing them correctly. he stood up with a walker today, and they have him pulling himself along with his feet when he's in the wheelchair. his feeding tube is out, and he's feeding himself with cutlery that's weighted to help counteract the tremors in his hands.

he talked about the doctor telling him how long his surgery was. i don't think he remembers very much. i don't know if he remembers me being there at all; that thought hurts me a great deal, but i know that i helped Mom get through some of the worst days and i just have to be satisfied with that.

after i got off the phone i just melted down in tears, like a dam had broken. it's been more than an hour and a half and i am still shaky. part of this is that i had a migraine yesterday, but i'm feeling weirdly grateful that i had a migraine yesterday (and so was tired enough this am to work from home in order to allow for periods of rest) so that i could cry at home today.

this is the second time that i've happened to be home when there was big emotional news about Dad. convenient, that.
ironymaiden: (rich zoe)
today my sister-in-law sent me a video of dad walking down the hall in his support harness. he's been steadily improving all week. Mom is going to try to get me a phone call with him tomorrow. he can talk on the phone.
ironymaiden: (mind)
i am home and back at my first real day of work. it's all very normal and very alien all at once.

Dad is progressing. his aphasia diagnosis is official, and as far as i'm concerned that's hopeful - he needs to work on getting his words out, but behind that barrier he is very much himself. to his limited ability, he's been friendly with the staff and making jokes. i know it will be a long road, but he is so game and so patient and so determined.

we still don't know why his symptoms wax and wane. sometimes he can't move his right extremities at all, sometimes they're just weaker than the left. when he's tired his speech is soft and slurred, and he might only be able to manage yeses and nos. there's no way to measure if it's seizure activity because his scalp is still too delicate for EEG. but the expression is consistent with left-side brain damage and that is where the tumors were. from discussion with mom, i think some of this was coming on before the surgery. being optimistic, i can see how having the tumors out and doing intensive rehab could get him back to pre-surgery baseline and maybe better.

the last thing i did before i left the hospital was to ask him to sing with me. (i suspected from previous reading that he would be able to sing more fluently than speak.) he led as we sang the song he used to sing to put me to sleep:
Sixteen Tons.*

we made his nurse cry.




*Dad sang weirdly inappropriate material to and with me when i was a child. i bought a handful of mp3s for songs we used to sing together and sent them to mom to try getting him to sing along, part Kenny Rogers and part Peter Paul & Mary. Kenny Rogers songs we used to sing together included a wife cheating on her disabled veteran husband, rape and revenge killing, a man riding in a train car with a dead body, and an ex-husband berating his unfaithful wife in public.
ironymaiden: (dandelion)
it was freaking 75F here today. I took mom on a the level route I found to Fifth/Forbes (the two one-way arterials that are the heart of the Oakland neighborhood's business district) and bought her Thai for lunch and then went to Dave & Andy's for ice cream. my favorite flavor happened to be in rotation today, so that was pretty great.

Dad was bright-eyed and chatty (for him) when we arrived at the hospital this morning, but his occupational therapy session of placing blocks and pegs with his bad hand tired him out completely. like, that session was great. and apparently he was great before we got there - his morning OT starts with "ADLs" (Activities of Daily Living) like washing up and getting dressed. but then he was groggy for his speech therapist and for his physical therapist. *sigh* his PT was very understanding and put him down for a nap before his next session. (I feel a little odd saying it that way, but it does take two people to get him into bed.)

last night he got a beard trim and a shave (needed; Dad has had a beard all of my life but he keeps after his cheeks and neck) and today he was wearing jeans and a polo shirt and his socks. Mom knits his socks. they were admired by all.

my sister arrives tomorrow. fingers crossed.
ironymaiden: (rachel maddow)
today was a good day. I went to occupational and physical therapy with Dad. I helped!

as I said to his OT, way better than sitting by his bed and knitting. My job was to get him to look up at me, and he did. He handed an object to me with his weak hand. He walked to me (with two people supporting him) three times. I held up fingers and he told me how many. He answered all sorts of questions correctly and quickly.

...it's kind of killing me that this is fun and exciting and I'm going to leave on Friday. then again, if he slides back again tomorrow it's going to feel even more rotten.

The rehab hospital is part of the same complex as where Dad got his surgeries, but used to be an independent organization: a teaching hospital for Jewish physicians and nurses. Today I found a lovely history exhibit lining a main hallway and hope to get time to read all of the displays.

So yeah, I think i'm going to work on Pacific time this week so that I can attend Dad's therapy sessions.
ironymaiden: (boid)
at the inn, running laundry. mom had a brainstorm about having me run errands during the day when we weren't both knackered. I have enjoyed the chance to have a long phone call with C and generally be introverted.

Dad came through the surgery fine. He now has skin from his left leg on the right side of his head. medical details )

***
I like to fall asleep to an audio book. Last night I was so tired I forgot to set the sleep timer. Woke at 1:30am to mom waving the phone at my face asking how to turn it off. fortunately it turns out that my response to a shadowy figure menacing me is to scream rather than to, say, hit them.

We've been laughing about that all day.
***

I found a gentle path from the hospital (through some connected buildings) to a block with Indian and Thai food. I'm hoping to get mom to go out for dinner (the burgh is very vertical; Seattlites can imagine we're on Pill Hill). If this laundry ever dries...
ironymaiden: (snow)
as noted previously, the hospital has charming robots trundling around. of course i haven't seen one since the other day, but their parking signs are definitely all over. here's an article about them.

Dad is doing fine now. other than being super-tired he's lucid and chatty and able to do things like feed himself.

cut for medical squick )

tomorrow will be a second surgery with the plastic surgery team to finish putting his head back together. i'm pleased since it means that they figured out what to do. unfortunately we never managed to talk to the doctor ourselves, just got stuff second hand from Dad or his nurse. so i guess now we'll get the real rundown when the surgery is done and the surgeon comes out to do the customary family debrief.

i seem to still remember how to drive in snow, which is fortunate since snow and also hella hills. (i have a soft spot for Pittsburgh and if i had to pick a place to live in PA, this would be it.)

***
in other news, NBC Olympic coverage still blows. really missing CBC.
ironymaiden: (PA)
we are in Pittsburgh and I survived driving my parents' car that takes control of the wheel when it thinks you're weaving too much.

I like our residence inn, in spite of it being not the one I thought it would be. it is near the hospital, but not walking distance. At least we have a view of the Cathedral of Learning.

we had very good Chinese delivered for dinner (pretty sure the eggrolls were house made but it's PA so there was still duck sauce) and it cost $20 including a tip that the delivery guy thought was generous. the more I think about it, the more I hope Pittsburgh doesn't get HQ2.

ratatouille

Feb. 5th, 2018 10:42 am
ironymaiden: (snow)
And i am safe at my parents' house.

All went well, even the part where I had to cross the entire Philadelphia airport in under 30 minutes.

It turns out the roads were terrible last night so it would have been bad for my brother to pick me up in Wilkes-Barre, it would have been bad for me to have tried to rent a car from Newark, and this hot mess was probably the safest of all outcomes.

I have snatched a bite of my cold pastry, and soon we are having grilled cheese and tomato soup for lunch which is the great comfort meal of my childhood.

And then, fortified, off to Pittsburgh.
ironymaiden: (PA)
backdated to the right place in the narrative. i had this written and never posted it.

Dad has meningiomas, which grow back to impairment size every 7-10 years. see the braaains tag for some backstory.

i'm heading for PA pre-dawn on Sunday. ticket is booked, ride from the airport is set, i finally knuckled under and bought a real laptop bag.

we're choosing to plan as if dad will survive surgery, so i'll be the one with mom at the hospital.* care rotation is set up with A and D; i'll hand off to A (after she's cleared to travel post-surgery on her eye), A will hand off to D (allowing him to go on his planned vacation). B lives in the area and will pinch-hit as needed.

currently i am most concerned that i could get sick. i feel rough, but i am so emotionally wrecked with worry for my parents and pre-missing C and father-in-law D getting some ugly screening results that i'm not really able to tell the difference between allergies and viruses and stress chemicals.

***
making things to hold back chaos:
i've been obsessing over packing knitting for the trip. i think i have myself down to three projects: the sweater that will be good chart work for the plane and a nearly mindless project as soon as i get into the body, the very portable socks in the prettiest yarn, and the very portable cowl that is so soft. i quickly talked myself out of packing my wheel (the sidekick is wee enough to possibly be a carryon, but i would have to check the rest of my stuff) or a spindle (the mindlessness is good, dropping and damaging my purpleheart spindle because of stress butterfingers would be bad).

clothes:
when i do one of these trips, where shit could go horribly wrong, i always debate about whether to wear favorite clothes or not. am i willing for this item to be the thing i was wearing when dad died? vs shouldn't everything i bring give me joy and make me feel confident?



*my siblings are half-siblings; their father died of cancer when they were kids. i'm not discounting their relationship with dad (mom remarried while they were still pretty young and he is beloved) but i do what i can to keep them out of the hospital. i'm also the most fascinated/least squicked by medical stuff.
ironymaiden: Animated young man wearing headphones and bobbing his head (music)
via [community profile] thefridayfive

1) What is the first song you remember from your childhood?
tough to say. there was always music in my day to day life - Mom played the piano, there was always music playing around the house or in the car, everyone liked to sing along with whatever they were playing. when i was little my three siblings were still in the house but old enough to have their own music, so i was exposed to five different tastes in music.

i guess i'll say Bushel and a Peck because i definitely remember mom singing it to me when i was small enough to be rocked to sleep.

2) What is the first music you purchased with your own money?
pretty sure that was a cassette tape of Sports by Huey Lewis and the News. that's the one that had a bunch of hits, including I Want a New Drug.

3) What's a piece of music that you know by heart?
no, there is too much.

let's go with The Gambler. my dad had an 8-track of Kenny Rogers' Greatest Hits and we used to sing along in the car all the time.

4) What's a song that makes you turn off the music right away?
...i don't have that like i used to. i used to hate stuff that got overplayed, but the days of being unable to control what music is playing are over - i don't listen to commercial radio, i don't work retail, and i'm not stage managing musicals.

that said, i usually don't like to hear anything by Chicago.

5) And why?
there's something about Chicago's use of brass combined with Peter Cetera's voice that really sets my teeth on edge. there are certain tenor sounds that i just hate - Peter Cetera, Geddy Lee*...where i love the sound of Sting and Robert Plant. and i really like ska brass and the Blues Brothers.

but fuck Chicago.


*it has been a recurring minor conflict in my romantic life that i am largely unable to enjoy Rush because i hate the sound of the vocals. but apparently "likes Rush" is my type.

fuel

Jun. 17th, 2016 09:01 pm
ironymaiden: (waiting)

C is driving from his parents' house in NH to PA to get crap out of his parents' crap-filled house in PA. while I love living in a future where we can chat on and off all day, it means that the weasels have started to whisper in my ear because I haven't heard from him for 12 hours.

ironymaiden: (fruity oaty bar!)

ice castle 2
Originally uploaded by green eyed so and so.
i never would have chosen to go to Disney World on vacation (and i still won't) but when someone else is paying for part of it and i get to see my family it's very nice. i get it: they hold your hand from the moment you step off the plane until you get back to the airport on the way home. our agenda was to visit with the family, and maybe ride some rollercoasters. anything else was a bonus.
Read more... )
kudos to my sister-in-law for putting it all together. she made a handful of group meal reservations (not even daily) but otherwise we were free to break into small groups and self-schedule. we took a lot of afternoon naps, i took a lot of baths, i still rode rollercoasters with my Dad and the Haunted Mansion with my niece, and we all saw the Wishes fireworks from the top of the Contemporary Resort after dinner at the California Grill. awesome.
ironymaiden: (fruity oaty bar!)

ice castle 2
Originally uploaded by green eyed so and so.
i never would have chosen to go to Disney World on vacation (and i still won't) but when someone else is paying for part of it and i get to see my family it's very nice. i get it: they hold your hand from the moment you step off the plane until you get back to the airport on the way home. our agenda was to visit with the family, and maybe ride some rollercoasters. anything else was a bonus.
Read more... )
kudos to my sister-in-law for putting it all together. she made a handful of group meal reservations (not even daily) but otherwise we were free to break into small groups and self-schedule. we took a lot of afternoon naps, i took a lot of baths, i still rode rollercoasters with my Dad and the Haunted Mansion with my niece, and we all saw the Wishes fireworks from the top of the Contemporary Resort after dinner at the California Grill. awesome.
ironymaiden: (red)
so C got an iPod and the first season of Starblazers on DVD. of course, he is rapturously watching starblazers with his brother and hasn't looked at the iPod since (admittedly, he did put it out to charge).

the time with my units and sibs was pretty great. our accomodations were nicer than any of our homes.

highlights:
Jamestowne Settlement - kicks the shit out of Colonial Williamsburg. 17th century + native americans beats those boring commercialized colonials every time.

Hayden (aged 5, through tears) "but i don't want to leave the penthouse!" and other panics that he might be sent back to PA.

talking about Star Wars with my eight year old niece. there's hope for her yet.

singing "Swing Low" on the banks of the James(?) River, spontaneously, with strangers.

dinner in a private room at King's Arms with our own fireplace and hot buttered rum.

Buffy season 5 AND the Two Towers super box set with Smeagol bookend.

The Candle Factory.

whirlpool tub.

arriving so stealthily at the inlaws that we called them on the cel to come open the door (three dogs missed a car coming and going. golden retrievers are so lame;)

genuine delight from all the people who got pictures.

Doug and Karen are really happy together, and eerily similar.

the simple joy of shared references. only with my siblings can i quote Monty Python, My Favorite Year, and Ghostbusters in the same brief conversation. especially The Secret Policeman's Other Ball. how many other people will merrily pull their shirts over their heads and chant for the end of the world?

...so now i'm in the all-Atkins house and we can be diet wonky together. i had no idea how much extra weight Mike was carrying. good to have big chunks of meat and green vegetables again without the frustration of xmas cookies.

happy holidays everyone.
ironymaiden: (WoC)
so i talked to both big brothers today.

Doug is married and it was beautiful. Yay.

more importantly, i had a good talk with Bill about Bovine Spongiform Encephalitis. he explained to me about why animals get fed animal remains. when beef remainders (all those prion-rich things like brains & spinal cord that we're not supposed to eat) go to a rendering plant, the major product is not fertilizer, but "blood meal" and "meat & bone meal" which is sold by the ton as a feed additive. this is the most profitable use of those last cow bits. animal feed is based largely on corn, but this doesn't provide enough protein for the kind of muscle growth we need for meat. for example, hogs need 15% protein to grow well, and corn only supplies 12%. adding the animal meal also kicks in complete amino acids, unlike other protein sources like soy. so i said, but they're all ranches out here, why would they be feeding them at all? supposedly the process is that ranched beef come in for "finishing" just before they go to market and are fed a more nutritive higher protein feed for a brief time.

"but i thought that feeding animal products was banned several years ago? "

"there's a loophole in every one of those laws, kind of like how the PT Cruiser, which is a Neon with a different body, is considered a truck and brings down the average gas mileage for all the Daimler-Chrysler SUVs."
ironymaiden: (WoC)
last week was just madness. i've done 10+ hours of overtime and could be doing more. but i'm pretty happy.

all is resolved with Douglas, and we're putting a big box of Dilettante truffles, brandy cherries, and Kama Sutra oil (the cinnamon, alas we could not find the tasty, tasty cherry almond) in the mail tommorow which should reach Wisconsin in time for wedding goodness.

Yule is fast approaching and i can't get away from C to finish shopping for him. we're terrible - we were both so excited about the stuff we already had that we did a token gift exchange Saturday. i got him a really nifty Army Transport case for all his 40K guys, and he was thrilled. i embroidered his name on the strap and everything. geek love.

he gave me the cd he didn't hide too well at the last show :)

i was thrilled.

what is it about middle eastern men that they can grow those really long full beards? maybe it's in the food or the air...sure Saddam looked rough, but i just remember that bit from Designing Women about how those skinny nebbishy guys who get taken hostage get all stubbly and rakish and sexy in captivity, and then they get rescued and cleaned into geekiness again.

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