Day 28

Aug. 7th, 2009 10:29 pm
ironymaiden: (Default)
[personal profile] ironymaiden
C and I had the dinner shift with [livejournal.com profile] e_bourne tonight. We came back to the house, where E got to play with Kai (and deposit checks and pay bills), and then took her to West 5 for comfort food. It was a good visit.

She asked me to write the update for her tonight.

Mark started having physical therapy today, where they come and do range of motion exercises with him. The therapist says that he will have extra work to do with his left leg, where there is scarring from pulling the vein for the emergency bypass.

He is really uncomfortable with having a tube down his throat. Basically, he's getting enough oxygen, but it feels so wrong that he periodically panics because it doesn't feel like he's breathing enough. He's on a drug to calm him so that he can get enough rest.

The plan for Monday is to give him a tracheotomy and a feeding tube directly into his stomach. Sounds scary, but what it does is get all that stuff out of his mouth and the top of his throat to let him do things like swallow naturally, sit up, and (with some coaching on technique) talk.

I saw him briefly yesterday and today; when he's not on the drugs he's lucid and able to transmit information with nods and his eyes. He's obviously desperate to communicate.
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